John's Town     |   home
Experts   |   The ALS Functional Rating Scale (ALSFRS)   |   The ALS Radio Hour   |   ALS webpages
The ALS Functional Rating Scale (ALSFRS)
I am at 18 now.

a. Speech
4
Normal speech processes
3
Detectable speech disturbances
2
Intelligible with repeating
1
Speech combined with non vocal communication
0
Loss of useful speech

b. Salivation
4
Normal
3
Slight but definite excess of saliva in mouth; may have nighttime drooling
2
Moderately excessive saliva; may have minimal drooling
1
Marked excess of saliva with some drooling
0
Marked drooling; requires constant tissue or handkerchief

c. Swallowing
4
Normal eating habits
3
Early eating problems - occasional choking
2
Dietary consistency changes
1
Needs supplemental tube feeding
0
NPO (exclusively parenteral or enteral feeding)

d. Handwriting
4
Normal
3
Slow or sloppy; all words are legible
2
Not all words are legible
1
Able to grip pen but unable to write
0
Unable to grip pen

e. Cutting Food and Handling Utensils (patients without gastrostomy-feeding tube)
4
Normal
3
Somewhat slow and clumsy, but no help needed
2
Can cut most foods, although clumsy and slow; some help needed
1
Food must be cut by someone, but can still feed slowly
0
Needs to be fed

Cutting Food and Handling Utensils (alternate scale for patients with gastrostomy-feeding tube)
4
Normal
3
Clumsy but able to perform all manipulations independently
2
Some help needed with closures and fasteners
1
Provides minimal assistance to caregiver
0
Unable to perform any aspect of task

f. Dressing and Hygiene
4
Normal function
3
Independent and complete self-care with effort of decreased efficiency
2
Intermittent assistance or substitute methods
1
Needs attendant for self-care
0
Total dependence

g. Turning in Bed and Adjusting Bed Clothes
4
Normal
3
Somewhat slow and clumsy, but no help needed
2
Can turn alone or adjust sheets, but with great difficulty
1
Can initiate, but not turn or adjust sheets alone
0
Helpless

h. Walking
4
Normal
3
Early ambulation difficulties
2
Walks with assistance
1
Nonambulatory functional movement
0
No purposeful leg movement

i. Climbing Stairs
4
Normal
3
Slow
2
Mild unsteadiness or fatigue
1
Needs assistance
0
Cannot do

j. Breathing
4
Normal
3
Shortness of breath with minimal exertion (e.g. walking, talking)
2
Shortness of breath at rest
1
Intermittent (e.g. nocturnal) ventilatory assistance
0
Ventilator dependent

Cedarbaum J. Archives of Neurology. 1996 Feb. 53(2):141-7